Thursday, June 24, 2010

Week 1 Update-Lymes

Hello all,
Let's see I have finished 7 doses of anitbiotic through IV and we aren't seeing a huge change...YET..... Most say it isn't until the end of week 2 .....keep praying.

For a real picture of how I am doing I must be honest and tell you that I am not well.  I have some really great moments followed by mostly low moments.  I think we finally have the pain meds at the right levels and so I am comfortable most of the time.  I have  been in bed for most of the week.. and the hope is that I will feel better over the next week to spend more time downstairs.  I can finally sit in my room without a towel or something over my eyes.  I am able to eat and keep things down  which is huge.  I am finally enjoying all of these amazing meals that have been arriving by angels at my door.  The PICC line was less than fun and has been a source of pain and tenderness since I got it.  It has been bearable but nowhere near the "it's nothing " they all said it would be.  The hope is that at the end of the 28 day run we will have knocked out the lymes.......Okay so having said that I am okay....Could be a lot worse.

I have been constantly held up first and foremost by my amazing husband.  He has cared for me and our four kids tirelessly without complaint since all of this has happened. He has run the house and kids and meds effortlessly.  He is a rock at a time when I am not and I am so very grateful for him.  God truly knew what I needed when he picked Michael for me. My Parents and Mike's Parents as well as my brother, Jim, My sister in law, Lauren and my Nannie and Uncle Bob have made this a family affair.....They have been here and there whenever we needed them without question and I am so grateful to have them as my family.

Now we go on to my amazing group of friends and neighbors. How do I cover everyone who has made this situation not only manageable but somewhat enjoyable for my children.  For those of you who have brought or will be bringing meals I thank you.  I cannot believe how quickly the calendar has filled up and I sit here in tears realizing how many people have stepped forward to help me.  For those of you who have taken my children for playdates, movies, etc   Thank you from the bottom of my heart.  You have no idea how much it means to me to know that they are still out and having fun. They are probably have a more exciting summer than they would have it I were up and about....Teehee.   For those of you who have loaned us your older daughters for babysitting/mother's helper I thank you.  They give Michael a much needed break to get work done or catch his breath. The cards and emails have been so encouraging and I can't tell you how much they mean. 

These last few weeks have been such a challenge for me.  Both physically and emotionally and at times, spiritually.  To keep myself focused I have read daily from a book given to me by a very dear friend...Streams of the Desert.  Today's verse...."Concerning the work of my hands command ye me."  (Isaiah 45:11)  This book keeps me focused on the whole picture and not my own little part of the world.  I know that He is using this suffering for the Glory of His Kingdom and I am happy to be used for His Good.  Having said that it isn't easy....I have made a choice to allow Him to use this suffering and this situation to His Good.

A few things that have gotten me through......Laughter
Ray Stevens...My Own Grandpa was posted by my friend, Irene.  It started me laughing and led us to Bill Cosby Himself.....On a night when I was feeling so down and alone I was reminded that laughter is the best medicine....By the way if you haven't seen Bill Cosby Himself it is hysterical...Now that we have kids it is even funnier and they have portion of it on Utube.  Some of my favorites are Brain Damage, The same thing happens every night, and He's Jesus Christ  Check them out.

That same night my husband showed me one I had never seen....Noah.
I laughed at it but wasn't laughing so hard when I had this aha moment the next morning....I laid in the bed as I had been doing for so long...thinking...seriously what purpose can this serve...similar to Noah.  I then decided I would be treading as long as necessary.....Trust in Him. 

I've survived with laughter and with tears....
My Dad cam by Tuesday after graciously having my girls for the day at his pool and showed me this video on Youtube.  Through tears we both said...."This aint nothin"...For those of you who know my Dad you will understand this has always been his attitude about life. 
I am a huge country music fan so for those of you who aren't  I am sorry but I still thing you will enjoy.


Most of all I want to thank you all for your prayers and thoughts.....Storm the heavens for me because I truly don't want to stay this way.....unless of course it is His Will.


I am off to eat my lunch and sleep but wanted to let you all know how much you are appreciated and to fill you in on my medical stuff.  Keep in touch.  In Christ, Michelle








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